So yesterday we went to the hospital so Scott could get some outpatient chemo in the Medicine room and also get some occupational therapy done. Occupational therapy went well, Scott showed his therapist how to do the EFY Line dance. This involves a lot of arm lifts and movement. She was impressed!
We are so many months in to chemo and cancer I kind of felt like we were on the down hill slide and that I was not growing as I once was. I had not journal-ed enough to remember all I had learned.
This last week or so left me feeling like it wont be as easy as I had thought. I felt concerned after the platelet reaction that blew up Scott’s face. (We will probably need several more transfusions before we are finished with chemo) Then Sunday we went in for labs. He had enough platelets to not get a transfusion, so I was glad about that. But not by much, and his ANC or neutrophils were going down. This is unusual he usually has very little reaction to the Methotrexate, It has typically been an easier chemo for him. Yet his body was continuing to fall 11 or so days after chemo, and is taking its time at recovering. Tuesday I went out to grab some groceries and when I returned Scott announced that his elbow was hurting. He was afraid he had damaged it badly. I really did not like that. We have just gotten him closed up. He is finally sealed up like a normal person and can get wet with out concern. I recognized a familiar heavy feeling, like when we first began this battle. I began to realize I have more to learn, way more ! I began calling upon all I had learned in the past few months and trying to put it to work for me.
By Wednesday Scott’s body had begun to make platelets again, and his ANC was rising, albeit very slowly. We were glad about that. Now we were grateful that he is well enough to take chemo again. (that is a crazy thought to be grateful for chemo. But there are many moms who’s kids have run out of treatment options and would love to have the chance to have chemo again. Cancer is a weird world) His arm appeared to be fine, maybe just a stressed tendon.
So now to face the beast of Chemo. This week was doxorubicin. This chemo is given as an IV infusion in Scott’s port. It takes only an hour, on two consecutive days, which is easy and he shows no sign of sickness from it. But Doxo is a cardio toxin and we will not know its effects for many many years. We have done all we can do. We fast every time Scott gets chemo, we have prayed and it is in The Lord’s hands. Hopefully The Lord will provide yet another miracle for Scott’s heart to be uninjured. But more than anything I know that what ever road we are called to walk The Lord will go with us, make the way possible and teach us along the way.Wed we made new friends in clinic check out the video of our friend Markell. https://www.youtube.com/watch?
Wed afternoon chemo and Wed night we were given tickets to the Grizzlies game, but we gave them away for a quiet movie night. Brian flew in, he and I went out to Thai dinner ALONE! It was delicious!
Thursday (as the kids described), OT went well. I think Scott could feel the upcoming chemo breathing down his neck. So I was glad for the glass painting distraction. All the kids enjoyed painting, and it made the time go very quickly. Scott and his “Chemo buddy” Brianna made the most of their time getting the bright red infusion of doxo. And we counted another one DOWN!!! So 4 methotrexates and 1 doxo to go, if our scans continue to come back clear. We went to get mail Thursday and the housing department let us know they will not be continuing to use the hotel we are staying in. They are asking us to check out of here the next time we go home. This is a problem because all of the other housing units allow only 4 people. So the kids will not be able to come and visit. It will be just Scott and I. The Lord has provided miracles in the past, and we are praying that he again will. It is important, if not essential that we keep our family together. We are looking for other options, and hoping something works out. Our old stand by,the trailer, is not a great option now because of the cold and the possibility of freezing the pipes.
Thursday night we went to the Brad Paisley concert thanks to St Jude giving us tickets. He is a big StJude supporter. I was pretty concerned about taking our kids to a concert. But it was a pretty mild crowd and we sat with a bunch of other StJude folks. We stayed long enough to enjoy it and not long enough to expose the kids to anything crazy. We were home by 10:30.
We get some quiet time for the next few days. Scott needed to go and get a PEG shot today, other than that NO Dr appointments or needle sticks:) The PEG causes his bone marrow to get to work and produce some serious cells, which he will need after this chemo. His counts will shoot through the roof in the next couple of days, then begin to plummet until about day 16 post chemo. We are again beginning to be super careful to stay away from all illnesses. We should be recovering until day 21.
No Dr appointments or hospital visits until Monday! That is a long time for us. Our next chemo is scheduled for Feb 11th if Scott’s counts recover.
Thanks for taking this journey with us. Thanks for praying for us. I know the Savior has, and continues to walk us through this journey. We have felt his love, and comfort. He has opened doors and provided miracles. We have been tutored by him and taught to trust him more fully. I for one, have so much more to learn. And I am looking for the super glue to make it stick. I never want to forget, I want to be forever changed by the journey we have taken. ” More fit for the kingdom” a quote from a beloved hymn (here is a link if you would like to hear it. )
lyrics for More Holiness Give Me.
1. More holiness give me,
More strivings within,
More patience in suff’ring,
More sorrow for sin,
More faith in my Savior,
More sense of his care,
More joy in his service,
More purpose in prayer.
2. More gratitude give me,
More trust in the Lord,
More pride in his glory,
More hope in his word,
More tears for his sorrows,
More pain at his grief,
More meekness in trial,
More praise for relief.
3. More purity give me,
More strength to o’ercome,
More freedom from earth-stains,
More longing for home.
More fit for the kingdom,
More used would I be,
More blessed and holy–
More, Savior, like thee.
Text and music: Philip Paul Bliss, 1838-1876
- Singing the Platelet Blues
- Country Cares Video