This has been yet another good week! Adam, Katie, Dad and I all flew in a few days after Scott and Mom arrived in Memphis. I always like when we are together as a family. Scott finished another chemo last week, and recovered quickly. He doesn’t like staying in the hospital room, so we went downstairs for the evening and hung out on the couches playing games.
So this week we had some fun. We got together with a great family and our good friends at the Tri Delta house. This involved a lot of fun, food, board games, and table hockey.
We had an awesome time with them! I hope we get the chance to see them again soon.
Today, while Scott was in D Clinic, Katie and I went and made paper snowflakes with some nice volunteers! It was a lot of fun and we appreciate the time they took to give us a nice craft to do while we waited. Katie strung her snowflake on a string and wore it as a necklace. She liked it a lot 🙂
Tonight Scott is going impatient again for another chemo. This is always a bit hard, and we ask for your prayers that this will go as smoothly as possible. It’s a bit like feeding yourself to the lions, I suppose. Walking into a hospital room and lying down on the bed knowing within a few hours you’re going to be sick and exhausted as your body fights to be rid of the substance that in a sense is ruining you and saving your life at the same time.
Hey, This is Scott
I am doing good. Just about to get a chemo tomorrow early. I appreciate all of your prayers. We have been doing good. We hung out with another osteosarcoma family today and played pool in the teen room. It was fun and we had a good time. Thanks for all the help and support you guys lend.
We have had a fun week. Brian and the kids came up Friday night and we had some fun. After hours, the entire hospital is pretty much ours. We hung out down stairs by the cafeteria playing jenga and go fish. We spotted a huge skylight above and decided to try and capture our image in its reflection. It turned out a bit like a kaleidoscope. We laughed and had fun as we try to get a good shot. While we are all hanging upside down Scott’s nurse must have decided to take a break. Next thing we knew a couple of friendly nurses were spying down at us as we were hanging upside down on the sofas. That was a surprise!
Scott was released on Saturday afternoon and we enjoyed an evening as a family. Sunday we made it to the local ward here for Sacrament meeting. Then back to the hospital for lab checks, which were all good by the way. Sumday evening we did Family Home evening a day early since Brian was in town, that was a treat. Monday and Tuesday we had NO Doctor appointments!!! Everyday a kid is not in the hospital is a good day!!
As the kids said, Tuesday evening we hung out with a great family. They have just finished up their last chemo and all scans were clear. We are so happy for them!!! Wednesday (today) just labs, doctor visits, Snowflake making, fun in the teen room, school and OT exercises. Scott has a lot of work to do to get all of his movement and strength back. However, He is making progress and has good range of motion already.
If all goes well, there is supposed to be some fun around here on Friday. Keep an eye out for that post here, and photos on the community facebook page, Mortal Showers Bring Eternal Flowers.
We should be released from the hospital on Saturday.
Next week we do the first Scans Scott has had since surgery. We are praying they will be all clear, with no signs of cancer. We do not know the exact dates of the scans but we will let you know, I am guessing sometime before Wednesday.
5 more methotrexates and 2 more Doxorubicins!!! The count down begins! It has been a long road and it feels like we still have a long way to go. But I am beginning to feel like the end is in sight.
Chemo this Thurs(methotrexate), Chemo next Thurs and Friday(Doxorubicin, but outpatient so we dont have to stay in the hosptial!!. Then a break for 21 days, we hope to go to Ga for a week or so during that break.
I would not wish cancer on anyone! Yet, this experience has taught me and changed me in so many ways. I am so very grateful or that. Cancer is a deadly disease that helped me see my life and this world with a new perspective. I hope I will never forget the feelings I have had, the beauty I have seen. One thing cancer has given me is new eyes. I live with the same children, the same noise, the same mess. Yet, there is more beauty. There are moments when I am frozen with gratitude for that one moment. At those times I try to memorize the entire scene, freeze the image in my mind in hopes that I can recall it. Sometimes it is so beautiful, and my heart is so full it hurts. A beautiful hurt, but none the less, it is more that I can take in and enjoy. It will be work but I hope I can hold on to those lessons and be forever changed. Not just temporarily moved.
I wish there was a new way to say how thankful we are. There are not words to express the gratitude and I personally feel for all the prayers and support we have received. We have felt very loved and supported. We have felt the power of prayer and the united faith of so many people. Thank you for being apart of the many miracles.
- 2 good hands and 2 Surprised Doctors
- No Chemo today, but Scan results look good